MARC details
| 000 -LEADER |
|---|
| fixed length control field |
01877nmm a2200241 i 4500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
|---|
| control field |
20230722112437.0 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
|---|
| fixed length control field |
200130s2020 nyu fob 001|0|eng|d |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| International Standard Book Number |
9781479834327 (ebook) : |
| Terms of availability |
No price |
| 082 ## - DEWEY DECIMAL CLASSIFICATION NUMBER |
|---|
| Classification number |
618.920029 |
| 100 ## - MAIN ENTRY--PERSONAL NAME |
|---|
| Personal name |
Gengler, Amanda M., |
| Relator term |
author. |
| 9 (RLIN) |
22674 |
| 245 ## - TITLE STATEMENT |
|---|
| Title |
Save my kid : |
| Remainder of title |
how families of critically ill children cope, hope, and negotiate an unequal healthcare system / |
| Statement of responsibility, etc. |
Amanda M. Gengler. |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
|---|
| Place of publication, distribution, etc. |
New York : |
| Name of publisher, distributor, etc. |
New York University Press, |
| Date of publication, distribution, etc. |
2020. |
| 300 ## - PHYSICAL DESCRIPTION |
|---|
| Extent |
1 online resource. |
| 520 ## - SUMMARY, ETC. |
|---|
| Summary, etc. |
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in America. She reveals the unrecognised, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals - deeply rooted in the culture of illness and medicine - play in medical decision-making, healthcare interactions, and the end of children's lives. |
| 650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM |
|---|
| Topical term or geographic name entry element |
Critically ill children |
| General subdivision |
Medical care |
| Geographic subdivision |
United States. |
| 9 (RLIN) |
22675 |
|
|---|
| Topical term or geographic name entry element |
Critically ill children |
| General subdivision |
Family relationships. |
| 9 (RLIN) |
22676 |
|
|---|
| Topical term or geographic name entry element |
Parents of terminally ill children |
| General subdivision |
Psychology. |
| 9 (RLIN) |
22677 |
|
|---|
| Topical term or geographic name entry element |
Catastrophic illness |
| General subdivision |
Social aspects |
| Geographic subdivision |
United States. |
| 9 (RLIN) |
22678 |
|
|---|
| Topical term or geographic name entry element |
Child health services |
| Geographic subdivision |
United States. |
| 9 (RLIN) |
22679 |
|
|---|
| Topical term or geographic name entry element |
Health services accessibility |
| Geographic subdivision |
United States. |
| 9 (RLIN) |
22680 |
| 856 ## - ELECTRONIC LOCATION AND ACCESS |
|---|
| Uniform Resource Identifier |
<a href="https://dx.doi.org/10.18574/nyu/9781479863938.001.0001">https://dx.doi.org/10.18574/nyu/9781479863938.001.0001</a> |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
|---|
| Koha item type |
e-Book |
