Save my kid : how families of critically ill children cope, hope, and negotiate an unequal healthcare system /
Gengler, Amanda M.,
Save my kid : how families of critically ill children cope, hope, and negotiate an unequal healthcare system / Amanda M. Gengler. - New York : New York University Press, 2020. - 1 online resource.
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in America. She reveals the unrecognised, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals - deeply rooted in the culture of illness and medicine - play in medical decision-making, healthcare interactions, and the end of children's lives.
9781479834327 (ebook) : No price
Critically ill children--Medical care--United States.
Critically ill children--Family relationships.
Parents of terminally ill children--Psychology.
Catastrophic illness--Social aspects--United States.
Child health services--United States.
Health services accessibility--United States.
618.920029
Save my kid : how families of critically ill children cope, hope, and negotiate an unequal healthcare system / Amanda M. Gengler. - New York : New York University Press, 2020. - 1 online resource.
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in America. She reveals the unrecognised, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals - deeply rooted in the culture of illness and medicine - play in medical decision-making, healthcare interactions, and the end of children's lives.
9781479834327 (ebook) : No price
Critically ill children--Medical care--United States.
Critically ill children--Family relationships.
Parents of terminally ill children--Psychology.
Catastrophic illness--Social aspects--United States.
Child health services--United States.
Health services accessibility--United States.
618.920029