000			01877nmm a2200241 i 4500
005			20230722112437.0
008			200130s2020 nyu fob 001|0|eng|d
020			_a9781479834327 (ebook) : _cNo price
082			_a618.920029
100			_aGengler, Amanda M., _eauthor. _922674
245			_aSave my kid : _bhow families of critically ill children cope, hope, and negotiate an unequal healthcare system / _cAmanda M. Gengler.
260			_aNew York : _bNew York University Press, _c2020.
300			_a1 online resource.
520			_aA frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in America. She reveals the unrecognised, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals - deeply rooted in the culture of illness and medicine - play in medical decision-making, healthcare interactions, and the end of children's lives.
650			_aCritically ill children _xMedical care _zUnited States. _922675
650			_aCritically ill children _xFamily relationships. _922676
650			_aParents of terminally ill children _xPsychology. _922677
650			_aCatastrophic illness _xSocial aspects _zUnited States. _922678
650			_aChild health services _zUnited States. _922679
650			_aHealth services accessibility _zUnited States. _922680
856			_uhttps://dx.doi.org/10.18574/nyu/9781479863938.001.0001
942			_cEBK
999			_c13944 _d13944