TY  - DATA
AU  - Gengler, Amanda M.,
TI  - Save my kid: how families of critically ill children cope, hope, and negotiate an unequal healthcare system 
SN  - 9781479834327 (ebook) :
U1  - 618.920029 
PY  - 2020///
CY  - New York
PB  - New York University Press
KW  - Critically ill children
KW  - Medical care
KW  - United States
KW  - Family relationships
KW  - Parents of terminally ill children
KW  - Psychology
KW  - Catastrophic illness
KW  - Social aspects
KW  - Child health services
KW  - Health services accessibility
N2  - A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in America. She reveals the unrecognised, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals - deeply rooted in the culture of illness and medicine - play in medical decision-making, healthcare interactions, and the end of children's lives
UR  - https://dx.doi.org/10.18574/nyu/9781479863938.001.0001
ER  -